Our grateful thanks to the charity OCD Action for their contribution to our on-air report (which you can hear again via the audio player located further down this page) and for allowing us to reproduce the information below from their website - which you can visit by clicking here.
What Is Obsessive Compulsive Disorder (OCD) OCD is a clinically recognised disorder which affects around 1-2% of the population. It is debilitating and paralysing. People with OCD experience intensely negative, repetitive and intrusive thoughts, combined with a chronic feeling of doubt or danger (obsessions). In order to quell the thought or quieten the anxiety, they will often repeat an action, again and again (compulsions).
One of the greatest challenges that people with OCD face is the need to fight both the all pervasive stigma of mental health disorders and the widely held belief that OCD is a mild or even "quirky" problem that is nothing more than hand washing. Many people now use the term "a bit OCD-ish" without understanding the onerous nature of the disorder in its severe form.
OCD has two main features: obsessions and compulsions.
Obsessions are involuntary thoughts, doubts, images or urges. Common obsessions include, but are not limited to, fears about dirt, germs and contamination; fears of acting out violent or aggressive thoughts or impulses; unreasonable fears of harming others, especially loved ones; abhorrent, blasphemous or sexual thoughts; inordinate concern with order, arrangement or symmetry; inability to discard useless or worn out possessions; and fears that things are not safe, e.g. household appliances. The main features of obsessions are that they are automatic, frequent, upsetting or distressing, and difficult to control or get rid of. They are nearly always inconsistent with a person’s values.
Just as with obsessions, there are many types of compulsions. It is common for the motivation to carry out a compulsion in order to reduce the anxiety or to feel just right. Common compulsions include:
Compulsions can be observable actions, for example washing, but they can also be mental rituals such as repeating words or phrases, counting, or saying a prayer. Again, not all types of compulsions are listed here. The main features of compulsions are they are repetitive and stereotyped actions that the person feels forced to perform. People can have compulsions without having obsessional thoughts but, very often, these two occur together. Carrying out a compulsion reduces the person's anxiety and makes the urge to perform the compulsion again stronger each time.
Almost everybody experiences the type of thoughts that people with OCD have (e.g. wanting to double-check the front door or the gas). However, most people are able to dismiss these thoughts. People with OCD cannot ignore unpleasant thoughts and pay undue attention to them. This means that the thoughts become more frequent and distressing and, over time, they can affect all areas of a person's life, often their job and their family and social life. People with OCD can, however, appear to function perfectly normally despite being greatly distressed. This often makes it possible for people with OCD to hide their OCD . Because of this, OCD has often been called the 'secretive disorder'.
OCD is much more common than was previously thought. One reason why the prevalence of OCD has been underestimated in the past is that people with OCD are often afraid to seek help. They worry that other people will think they are mad, and often do not know that their disorder is a recognised condition with effective treatments.
It is important to remember that severity of OCD differs markedly between people but each person's distress is very real. In fact, OCD is listed by the World Health Organization as one of the top ten debilitating disorders. People with OCD are not mad or dangerous and do not carry out their unpleasant thoughts. Most people with OCD know that their thoughts are excessive or irrational but the anxiety they feel makes the thoughts difficult to ignore.
OCD can affect children, adolescents and adults. At least half of adults who get help for OCD already had it as children. Many did not receive treatment. This might be because they were embarrassed about it and did not tell anyone, or because doctors they asked for help did not know how to diagnose or treat OCD. While awareness of the disorder has increased, many healthcare and educational professionals still do not understand or recognise OCD and therefore are unable to diagnose it.
Although the cause of OCD is not known, research work has given some clues. There is likely to be a genetic vulnerability to developing OCD. The tendency to develop OCD seems to run in families; as well as there often being other family members with OCD, there are sometimes people with involuntary jerky movements (tics) or other mental health problems in the family.
Psychological factors such as susceptibility to stress or exposure to an emotionally traumatic experience are also likely to be in evidence. The good news is that, for the majority, OCD can be effectively controlled and treated.
One of the main benefits of understanding that OCD is that it is a problem that is not their fault. Children, adolescents, adults and their families do not cause OCD, but they can learn ways to challenge it!
Treatments. There are two recommended treatments for OCD, Cognitive Behavioural Therapy (CBT) and medication. Most people will find that that these treatments are effective for them and help them to get their lives back on track.
Both CBT and medication are available on the NHS. To access help from the NHS, your first step is to visit your GP. In some areas you may also be able to refer yourself to a local Improving Access to Psychological Therapies (IAPT) service. IAPT service specialise in providing talking therapies such as CBT. You can find your local IAPT service using the NHS Choices website. The OCD Action website will also give you contact details and let you know if you can self refer or if you need to go via your GP.
If you are starting out on the journey towards getting on top of your OCD then it is important that you know as much as you can about your treatment option and what good treatment looks like. OCD Action has a range of information for you to help you get prepared. Please also contact the OCD Helpline team on 0845 3906232. They can talk you through the treatment process, answer any questions you may have and let you know how they can provide ongoing support.
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All material on this website is provided for your information only and may not be construed as medical advice or instruction. No action or inaction should be taken based solely on the contents of this information; instead, readers should consult appropriate health professionals on any matter relating to their health and well-being.