Word on Health

Word On Dementia Action Week

This week on "Word on Health" we are focusing on Dementia Action Week with the CEO of Alzheimer’s Society, discussing growing concerns around delays in diagnosis and the lack of support many families experience after receiving life-changing news. You can find a link to the Alzhiemer's Society on our Links Page - You can hear our radio report again, at the bottom of this page. 

Dementia Action Week: Why Early Diagnosis And Better Support Matter. New survey findings highlighted during Dementia Action Week suggest it is taking an average of 3.5 years for some people to receive an official dementia diagnosis in the UK. Many families also report feeling “thrown to the wild” after diagnosis, with limited information, emotional support or practical guidance available.

What Is Dementia? Dementia is not a single disease but a term used to describe a group of symptoms caused by damage to the brain. It affects memory, thinking, communication and the ability to carry out everyday tasks.

There are several different types of dementia, including:

  • Alzheimer’s disease
  • Vascular dementia
  • Lewy body dementia
  • Frontotemporal dementia

Symptoms can vary from person to person, but dementia progressively affects how the brain functions over time.

Common Symptoms Of Dementia. Early signs may include:

  • Memory loss affecting daily life
  • Difficulty finding words or following conversations
  • Confusion about time or place
  • Changes in mood or personality
  • Difficulty concentrating or making decisions
  • Problems carrying out familiar tasks

Symptoms often develop gradually, which can make them difficult to recognise in the early stages.

Why Diagnosis Can Take Years. According to charities and healthcare experts, several factors contribute to delays in diagnosis:

  • Early symptoms may be mistaken for normal ageing
  • People may feel fearful or reluctant to seek help
  • Dementia can sometimes resemble other health conditions
  • NHS memory clinics are under increasing pressure
  • There are shortages of specialist staff in some areas

Early diagnosis is important because it allows people and families to:

  • Access treatment and support sooner
  • Plan for the future
  • Understand symptoms
  • Access financial and legal advice
  • Connect with local support services

Feeling Unsupported After Diagnosis. Many families say the period immediately after diagnosis can feel overwhelming. Common concerns include:

  • Lack of clear guidance about what happens next
  • Difficulty accessing social care support
  • Emotional strain on carers and families
  • Long waits for follow-up services
  • Financial worries and uncertainty

Charities say improving post-diagnostic support is now one of the biggest priorities in dementia care.

What Is Dementia Action Week? Dementia Action Week is an annual awareness campaign led by Alzheimer’s Society aimed at:

  • Encouraging people to seek help for symptoms
  • Reducing stigma around dementia
  • Improving understanding of the condition
  • Highlighting the experiences of people living with dementia and carers
  • Campaigning for better diagnosis and support services

The campaign also encourages communities, workplaces and healthcare providers to become more dementia-friendly.

When To Seek Medical Advice. It is important to speak to a GP if you or someone close to you is experiencing ongoing memory problems or changes in thinking, communication or behaviour.

While memory loss does not always mean dementia, early assessment can help identify the cause and provide reassurance, treatment or support where needed.

Listen to this weeks radio report

All material on this website is provided for your information only and may not be construed as medical advice or instruction. No action or inaction should be taken based solely on the contents of this information; instead, readers should consult appropriate health professionals on any matter relating to their health and well-being.